Caring for someone with a learning disability

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Caring for someone with a learning disability 2016-10-17T10:14:06+00:00

Caring for someone with a Learning Disability

Carers of people with learning disabilities are often unique amongst Carers. Many will experience a lifetime of caring for a son, daughter or sibling with learning disabilities. People with learning disabilities are people first. There are around 1.5 million people in the UK with learning disabilities. These impairments are present when a baby is born or acquired shortly afterwards.

Some people with learning disabilities care for a partner or friend, and often as families grow older the person with learning disabilities may start to care for their parent or Carer. This is known as mutual caring, and sometimes it is difficult to see when this is happening and to get the right support.

People from diverse communities face additional challenges when caring for a person with a learning disability

Carers may have decades of experience from negotiating health, education and social care systems through infancy, childhood and adulthood. Between 5 – 15% of people with learning disabilities show behaviours which can be challenging for Carers to deal with. Such behaviours may include aggression, destructive behaviours or self-injury. It is important to access support to understand the reasons behind these behaviours and develop strategies to support the person with a learning disability and also to manage these behaviour

Whether you receive a diagnosis of a learning disability for your son or daughter at birth or during childhood, or you have started to care for an adult with learning disabilities, you may feel confused and distressed. We are here to support you to help make your life as a Carer more manageable and help the person you care for reach their full potential.

Information – we can provide information about support and services available and Carers’ entitlements and rights.

Support – we offer a listening ear, support groups, activities and training for Carers.

Carer’s Needs Assessment – we carry out Carer’s Needs Assessments on behalf of the local authority.

Kent Carer’s Emergency Card – we administer this free service to provide peace of mind when you are away from the person you care for.

Health and Wellbeing – we offer health and wellbeing sessions to Carers and work with GP’s to identify and support Carers’ own health and wellbeing.

Assistance with Welfare Benefits – you may be entitled to Carer’s Allowance and the person you care for may be entitled to Personal Independence Payment.

  • Mencap Mencap is a UK learning disability charity working with people with learning disabilities and their families and Carers. Mencap
  • The Challenging Behaviour Foundation Charity for people with severe learning disabilities whose behaviour challenges. Making a difference to the lives of children and adults across the UK through:
    • information about challenging behaviour
    • peer support for family carers and professionals
    • supporting families by phone or email
    • running workshops to reduce challenging behaviour
    • speaking up for families nationally
    Our vision is for anyone with severe learning disabilities who displays challenging behaviour to have the same life opportunities as everyone else. We work to improve understanding of challenging behaviour, empower families with information and support, and help others to provide better services and more opportunities. The Challenging Behaviour Foundation
  • The Foundation for people with Learning Disabilities Our work influences government and local authority policies and services so that they better meet the needs of people with learning disabilities, their families and carers. We also raise awareness of learning disability issues amongst the wider public, in order to breakdown stigma and discrimination. We aim to break down the economic and social barriers and prejudices that people with learning disabilities face throughout their lives, as well as providing information, resources and services that can help them lead fuller, more independent lives. Central to our work is our involvement of people with learning disabilities, their families and carers themselves. Their insight, advice and experiences is crucial to the research we undertake to inform our policy, public information and service improvement work.
    The Foundation for people with Learning Disabilities
  • British Institute of Learning Disabilities A charity which exists to improve the quality of life of all people with a learning disability. British Institute of Learning Disabilities

Approximately 1.5million people in the UK have a learning disability.
29,000 adults with a learning disability live with parents aged over 70 or over, many of whom are too old or frail to continue in their caring role

(Source: Care Quality Commission Report 2012)
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If you are caring for someone with a Learning Disability we can provide you with support, information and access to services

If you would like more information or support from us, please contact us by e-mail, or telephone on 01304 364637.
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